welcome to the sister blog of 'my dreamings'



the title may be a bit strange, but to me it has a comforting feeling and makes me think of sitting by a roaring fire, wrapped in a lovely wool blanket.



i set this up in order to vent the occaisional frustrations i feel with living with M.E, diabetes and Fibromyalga (and so as to not vent in 'my dreamings') and to provide links to sites that i hope readers living with the same can access...and of course anyone with any illness can vent their own frustrations and hopes and wishes via comments!



~Bright Blessings to you all~




~where shall we get religion?



beneath the open sky, the sphere of crystal silence surcharged with deity



the midnight earth sends incense up, sweet with the breath of prayer



go out beneath the naked night and get religion there~



sam walter foss



Friday, 11 February 2011

~ouch ouch~

look one less ouch today!

my shoulders are slightly less painful and the most painful moved from left to right.
i didn't wake up until about 10.30 this morning and have done very little...drink lemon tea and eat toast with homemade whisky marmalade

...however saying that-mr sharp stabby big needle is coming back...i can feel him...


i went a bit crazy and decided to cut up a carrot or two to roast with some tomato and red onion...it took all my strength to cut up the carrot and not shake enough to cut off any fingers in the process...spoons used...a few.

Posted by at 16:59
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1 comments:

Zuzana said...

Lemon tea and homemade whiskey marmalade, that sounds great.;)
I hope you can keep war enough this evening.;) And just to remind you - we are a bit more than a month away from spring and the return of the light.;)
Have a lovely weekend,
xoxo

11 February 2011 18:36

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"We must protect the forests for our children, grandchildren and children yet to be born. We must protect the forests for those whoQwatsinas, Nuxalk Nation

M.E/CFS Disability Scale

% Fit and well for at least the past three months. No symptoms at rest or following activity. Capable of full-time employment.
10% Generally well. No symptoms at rest. Occasional mild symptoms may follow activity. Capable of most forms of full-time employment.
20% Occasional mild symptoms at rest. More noticeable symptoms following activity. Some restriction of capabilities which require physical exertion. Able to work full-time but difficulty with work that requires physical exertion.
30% Mild symptoms at rest. Limited ability to carry out some tasks which require physical exertion. May be able to work full-time.
40% Mild or moderate symptoms at rest. Variable ability to carry out tasks associated with normal daily living. Unable to work part-time in a job involving frequent physical exertion. May be able to work. May be able to work part-time in other types of employment.
50% Mild to moderate symptoms at rest. Moderate to more severe exacerbation of symptoms following physical and/or mental exertion. Unable to carry out strenuous physical tasks. Able to perform light duties or desk work for several hours a day, provided adequate rest periods are provided.
60% Moderate symptoms at rest. Moderate to severe symptoms following any form of physical or mental exertion. Unable to carry out strenuous duties. Able to carry out light duties/desk work for one to three hours a day, provided adequate rest periods are available. Generally not confined to the house.
70% Moderate to severe symptoms at rest. Severe symptoms follow any physical or mental activity. Able to perform desk work or light duties for one or two hours during the day. Often confined to the house and may require wheelchair assistance at times.
80% Moderate to severe symptoms at rest. May only be able to carry out a minimal range of physical activities relating to personal care (e.g. washing, bathing) frequently unable to leave the house and may be confined to a wheelchair or bed for much of the day. Unable to concentrate for more than short periods of time.
90% Severe symptoms at rest. Bedridden and housebound for much of the time. Experiences considerable difficulties with many aspects of personal care. Marked problems with mental functioning (e.g. memory, concentration). Requires a great deal of practical support.
100% Severe symptoms on a continual basis. Bedridden and incapable of living independently. Requires a great deal of practical social support.

(Extract taken from Dr Charles Sheppard's book "Living with M.E."/www.chronicfatiguesyndrome.me.uk~see my links)