welcome to the sister blog of 'my dreamings'



the title may be a bit strange, but to me it has a comforting feeling and makes me think of sitting by a roaring fire, wrapped in a lovely wool blanket.



i set this up in order to vent the occaisional frustrations i feel with living with M.E, diabetes and Fibromyalga (and so as to not vent in 'my dreamings') and to provide links to sites that i hope readers living with the same can access...and of course anyone with any illness can vent their own frustrations and hopes and wishes via comments!



~Bright Blessings to you all~




~where shall we get religion?



beneath the open sky, the sphere of crystal silence surcharged with deity



the midnight earth sends incense up, sweet with the breath of prayer



go out beneath the naked night and get religion there~



sam walter foss



Thursday, 10 March 2011

~allow me to moan~

i not long commented on my 'other' blog how at 3pm my day is drawing to an end.

i am tired, really tired.
i feel like i am wandering through treacle.

i really want to do some crafting but know i dont have the strength to get it all out, work and then put it all away again.

the pains in my collar bones and shoulder blades are starting to needle and hurt, my wrists hurt from my other blog post and yet my mind is full of everything it could possibly be full of.

i got my book out a few hours ago but gave up after a few pages as i found it impossible to follow what i was reading

i am thinking of getting my crochet out but my aches and pains are telling me no

this is deadly territory as i get to the point of frustration and its easier to go to bed and listen to the radio than it is to simply 'be'

can i moan and say how much i hate this?

i know there are lots of folk out there worse than me but just once let me have a moan
Posted by at 15:39

1 comments:

Ms.Chief loves wigwams! said...

Yes, Dear Soul have a good old moan as sometimes the pain is too much to bear, we all get weary during the journeys. Moan release then in stillness & quietness, draw a deep breath in , fill yourself up slowly with love - with every breath inhale slowly through the nose, soo slowly as if smelling the most beautiful fragrant flower, a slow light inhalation to the count of 5 seconds. Then a slow breath out, to the count of 5. Close your eyes & feel the breath of love & life fill your senses with peace, with warmth with a connectedness to all thats sacred. During the trials & tribulations we all unite, you are not alone . . draw your breath & feel the adrenalin reduce, the heart rate slow the body becomes balanced. Allow some inner peace to flood the turmoil & pain, just for a moment. Try it & see if it helps . . may take some practice, some visualisation but energy wise it works, The phenomenal healing power of unconditional Universal Love with penetrate your whole sense of being. Bless you during your pain, may you find some relief to conquer another day.

20 March 2011 22:22

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"We must protect the forests for our children, grandchildren and children yet to be born. We must protect the forests for those whoQwatsinas, Nuxalk Nation

M.E/CFS Disability Scale

% Fit and well for at least the past three months. No symptoms at rest or following activity. Capable of full-time employment.
10% Generally well. No symptoms at rest. Occasional mild symptoms may follow activity. Capable of most forms of full-time employment.
20% Occasional mild symptoms at rest. More noticeable symptoms following activity. Some restriction of capabilities which require physical exertion. Able to work full-time but difficulty with work that requires physical exertion.
30% Mild symptoms at rest. Limited ability to carry out some tasks which require physical exertion. May be able to work full-time.
40% Mild or moderate symptoms at rest. Variable ability to carry out tasks associated with normal daily living. Unable to work part-time in a job involving frequent physical exertion. May be able to work. May be able to work part-time in other types of employment.
50% Mild to moderate symptoms at rest. Moderate to more severe exacerbation of symptoms following physical and/or mental exertion. Unable to carry out strenuous physical tasks. Able to perform light duties or desk work for several hours a day, provided adequate rest periods are provided.
60% Moderate symptoms at rest. Moderate to severe symptoms following any form of physical or mental exertion. Unable to carry out strenuous duties. Able to carry out light duties/desk work for one to three hours a day, provided adequate rest periods are available. Generally not confined to the house.
70% Moderate to severe symptoms at rest. Severe symptoms follow any physical or mental activity. Able to perform desk work or light duties for one or two hours during the day. Often confined to the house and may require wheelchair assistance at times.
80% Moderate to severe symptoms at rest. May only be able to carry out a minimal range of physical activities relating to personal care (e.g. washing, bathing) frequently unable to leave the house and may be confined to a wheelchair or bed for much of the day. Unable to concentrate for more than short periods of time.
90% Severe symptoms at rest. Bedridden and housebound for much of the time. Experiences considerable difficulties with many aspects of personal care. Marked problems with mental functioning (e.g. memory, concentration). Requires a great deal of practical support.
100% Severe symptoms on a continual basis. Bedridden and incapable of living independently. Requires a great deal of practical social support.

(Extract taken from Dr Charles Sheppard's book "Living with M.E."/www.chronicfatiguesyndrome.me.uk~see my links)