welcome to the sister blog of 'my dreamings'



the title may be a bit strange, but to me it has a comforting feeling and makes me think of sitting by a roaring fire, wrapped in a lovely wool blanket.



i set this up in order to vent the occaisional frustrations i feel with living with M.E, diabetes and Fibromyalga (and so as to not vent in 'my dreamings') and to provide links to sites that i hope readers living with the same can access...and of course anyone with any illness can vent their own frustrations and hopes and wishes via comments!



~Bright Blessings to you all~




~where shall we get religion?



beneath the open sky, the sphere of crystal silence surcharged with deity



the midnight earth sends incense up, sweet with the breath of prayer



go out beneath the naked night and get religion there~



sam walter foss



Saturday, 7 May 2011

~why i dont...~

...post much

its simple really, typing hurts my hands, wrists, elbows, shoulders and neck and makes me both physically and mentally tired.

i really wanted to post this today and i am ignoring the pain.

yesterday i had the brown envelope that many in my position are dreading, the one saying they are being moved onto esa and so have the whole process of paperwork and medicals to attend.

usually you think oh okay that's fine~but given all the horror stories that people have experienced with atos, the people who do the medicals, all i, and many others feel, are a deep depression.

the aim is to get people to work, no matter how poorly they are and there is so much evidence of the way atos lie and ignore the reports of doctors and consultants.

its depressing~how can someone you have never met and knows nothing of your medical history be in a position to judge you~how can they ignore the reports of those who know you and your body so well.

its a total mystery to me

i wont go over how i am every day and all my symptoms, its here in another post...suffice it to say i have not improved and some things are considerably worse

i keep telling myself that whatever they do they cannot force me to work...and who would employ someone who would not be able to complete a single days work or guarantee they wont be off more than they are there?... and we have lived with almost no money before, we can go it again.

actually can i feel a bit sorry for myself? my collar bones are so painful...imagine someone constantly driving a small but very sharp knife into each of them...

Posted by at 18:37
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3 comments:

Kadeeae said...

"...and we have lived with almost no money before, we can go it again...." I certainly hope it doesn't come to that! It is reprehensible that this sort of funneling of patients is being allowed. I can't imagine that the worry of this can be doing you any good either :(

As for the lack of posting, you're missed here and on the 'other' blog, no doubt. But... :) your readers (& me! me! lol) understand totally.

I'm with you in spirit whether you do a blog post or not *H*

7 May 2011 20:01
laoi gaul~williams said...

thank you lovely :)

9 May 2011 08:18
Oded~Schwartz said...

I so get where you are coming from with this - ESA, unable to blog, pain etc.

Having been through the ESA process would def. recommended joining benefits and work (www.benefitsandwork.co.uk) makes so much difference with application. Best £20 I have spent. Good luck with it all and look forward to your posts whenever they are made :-).

OS x

PS. Make sure you send supporting evidence with app and take to medical. Appt letters, letter from carer/ partner, doctor etc. It all helps, I also sent copies to the DM with a covering note. Was so much work and stress and it took a month to complete, but I am glad I managed to put myself through it in the end. Can see why people give up on it..... Fingers crossed for you.....

25 May 2011 00:17

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"We must protect the forests for our children, grandchildren and children yet to be born. We must protect the forests for those whoQwatsinas, Nuxalk Nation

M.E/CFS Disability Scale

% Fit and well for at least the past three months. No symptoms at rest or following activity. Capable of full-time employment.
10% Generally well. No symptoms at rest. Occasional mild symptoms may follow activity. Capable of most forms of full-time employment.
20% Occasional mild symptoms at rest. More noticeable symptoms following activity. Some restriction of capabilities which require physical exertion. Able to work full-time but difficulty with work that requires physical exertion.
30% Mild symptoms at rest. Limited ability to carry out some tasks which require physical exertion. May be able to work full-time.
40% Mild or moderate symptoms at rest. Variable ability to carry out tasks associated with normal daily living. Unable to work part-time in a job involving frequent physical exertion. May be able to work. May be able to work part-time in other types of employment.
50% Mild to moderate symptoms at rest. Moderate to more severe exacerbation of symptoms following physical and/or mental exertion. Unable to carry out strenuous physical tasks. Able to perform light duties or desk work for several hours a day, provided adequate rest periods are provided.
60% Moderate symptoms at rest. Moderate to severe symptoms following any form of physical or mental exertion. Unable to carry out strenuous duties. Able to carry out light duties/desk work for one to three hours a day, provided adequate rest periods are available. Generally not confined to the house.
70% Moderate to severe symptoms at rest. Severe symptoms follow any physical or mental activity. Able to perform desk work or light duties for one or two hours during the day. Often confined to the house and may require wheelchair assistance at times.
80% Moderate to severe symptoms at rest. May only be able to carry out a minimal range of physical activities relating to personal care (e.g. washing, bathing) frequently unable to leave the house and may be confined to a wheelchair or bed for much of the day. Unable to concentrate for more than short periods of time.
90% Severe symptoms at rest. Bedridden and housebound for much of the time. Experiences considerable difficulties with many aspects of personal care. Marked problems with mental functioning (e.g. memory, concentration). Requires a great deal of practical support.
100% Severe symptoms on a continual basis. Bedridden and incapable of living independently. Requires a great deal of practical social support.

(Extract taken from Dr Charles Sheppard's book "Living with M.E."/www.chronicfatiguesyndrome.me.uk~see my links)