welcome to the sister blog of 'my dreamings'



the title may be a bit strange, but to me it has a comforting feeling and makes me think of sitting by a roaring fire, wrapped in a lovely wool blanket.



i set this up in order to vent the occaisional frustrations i feel with living with M.E, diabetes and Fibromyalga (and so as to not vent in 'my dreamings') and to provide links to sites that i hope readers living with the same can access...and of course anyone with any illness can vent their own frustrations and hopes and wishes via comments!



~Bright Blessings to you all~




~where shall we get religion?



beneath the open sky, the sphere of crystal silence surcharged with deity



the midnight earth sends incense up, sweet with the breath of prayer



go out beneath the naked night and get religion there~



sam walter foss



Tuesday, 20 September 2011

~atos lies~

oh yes they do!

well i had the dreaded brown envelope, swampy filled out the esa50 form with 12 pages of extra information plus some print outs from the nhs site with information on m.e and fibro and we post it off.

we get a call from my gp~please come in for twenty minute appointment to assist gp in filling out form relating to esa...make appointment.

phone call from atos 'to make an appointment'...in reality bullying me into an appointment we told them i would be unavailable for, apparently there was absolutely no other slot available (i do not believe that for a moment).
lose the will to live and make the appointment anyway.

we do some research, find out the form my gp has is an esa113...now this is important folks if you are going down this route.

the esa113 is a form that your doctor fills in and has the potential to get you through the whole depressing atos experience without one of their so called 'medicals'


~scroll down to q2 of the medical questions section~

phone back to say we want an appointment after they have received the information they requested from my gp. 
swampy has long agonising conversation with a chap that sounds like the squeaky voiced burger guy in the simpsons.he at first denies them sending my gp a letter (liars!), then a bit later tells swampy i do not need to be present when my gp fills out the form, he keeps trying to give us dates we specifically stated we were away...turns out they put the information down wrong *sigh* then he tells swampy we were 'deliberately making ourselves unavailable' well swampy hits the roof...anyway cutting a long story short and after another person, customer relations no less, telling us they 'cannot wait forever for a doctors report' we get them to agree to providing another date.

now here is the weird thing for a big, bad IT company, which atos really is...they cannot book appointments further ahead than three weeks!!!!!!

what it boils down to is they have tried to bully me into an appointment prior to getting the info from my gp so they can just score me 0 and place me as ft for work...and they will do this to you too.

i have been told by someone high up in the benefits system that i am unemployable and should be placed into the esa support group on the basis of my esa50 and my gp's information.

they are just one big fat joke and the government should be ashamed that they allowed them to take over and potentially ruin the lives of thousands of sick people.



oh and here is something else...

atos have quotas to fill each and every day to get their bonus...

they have to see so many people a day

they have to pass so many people a day as 'fit for work'

~*~*~*~

so my lovlies, even though it may sap your will to live and deplete your spoons please dont just lie down and take what atos throws at you~


they will in fact try to bully you into accepting the appointment they want you to have





this is rubbish, they have a systen of drop down list that allow no elaboration of a persons illness


and that for today is that!
the rest of my spoons are being saved for my 12 month post op untrasound check up
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1 comments:

spirit said...

I'm dreading filling in the esa/dla form(they've lowered the time from 6weeks to 4 now) or attending an atos medical...and feel i have no energy to prepare. I may take someone(pity cant take my specialist doctors lol ) with me to take notes, as i've heard that atos falsify the answers...hope you went on ok laoi x

30 October 2011 21:51

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"We must protect the forests for our children, grandchildren and children yet to be born. We must protect the forests for those whoQwatsinas, Nuxalk Nation

M.E/CFS Disability Scale

% Fit and well for at least the past three months. No symptoms at rest or following activity. Capable of full-time employment.
10% Generally well. No symptoms at rest. Occasional mild symptoms may follow activity. Capable of most forms of full-time employment.
20% Occasional mild symptoms at rest. More noticeable symptoms following activity. Some restriction of capabilities which require physical exertion. Able to work full-time but difficulty with work that requires physical exertion.
30% Mild symptoms at rest. Limited ability to carry out some tasks which require physical exertion. May be able to work full-time.
40% Mild or moderate symptoms at rest. Variable ability to carry out tasks associated with normal daily living. Unable to work part-time in a job involving frequent physical exertion. May be able to work. May be able to work part-time in other types of employment.
50% Mild to moderate symptoms at rest. Moderate to more severe exacerbation of symptoms following physical and/or mental exertion. Unable to carry out strenuous physical tasks. Able to perform light duties or desk work for several hours a day, provided adequate rest periods are provided.
60% Moderate symptoms at rest. Moderate to severe symptoms following any form of physical or mental exertion. Unable to carry out strenuous duties. Able to carry out light duties/desk work for one to three hours a day, provided adequate rest periods are available. Generally not confined to the house.
70% Moderate to severe symptoms at rest. Severe symptoms follow any physical or mental activity. Able to perform desk work or light duties for one or two hours during the day. Often confined to the house and may require wheelchair assistance at times.
80% Moderate to severe symptoms at rest. May only be able to carry out a minimal range of physical activities relating to personal care (e.g. washing, bathing) frequently unable to leave the house and may be confined to a wheelchair or bed for much of the day. Unable to concentrate for more than short periods of time.
90% Severe symptoms at rest. Bedridden and housebound for much of the time. Experiences considerable difficulties with many aspects of personal care. Marked problems with mental functioning (e.g. memory, concentration). Requires a great deal of practical support.
100% Severe symptoms on a continual basis. Bedridden and incapable of living independently. Requires a great deal of practical social support.

(Extract taken from Dr Charles Sheppard's book "Living with M.E."/www.chronicfatiguesyndrome.me.uk~see my links)